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Amyloid Email Discussion Group
The Amyloid On-Line Support Group, with over 500 subscribers worldwide, hosted by the ACOR group. |
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Amyloidosis Foundation
The Amyloidosis Foundation (formerly the ASN) website (USA based). Also in Spanish. Their case histories section is legendary! |
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Prof Philip Hawkins - profile
Clinical Director at the UK National Amyloidosis Centre |
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UK National Amyloidosis Centre
The NHS National Amyloidosis Centre is the only centre in the UK specialising in amyloidosis. The Centre has “state of the art” clinical and research facilities, and a team of highly qualified clinical, research and support staff. |
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Mayo Amyloidosis Clinic (USA)
Mayo Clinic is one of a few medical centers in the United States studying the diagnosis and treatment of amyloidosis. Services for International Patients:http://www.mayoclinic.org/english/services.html
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Prof Morie Gertz - profile
Senior Hematologist at the Mayo Amyloidosis Clinic. |
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Boston Amyloid Treatment & Research Program
This USA centre's goal is to evaluate and offer treatment to patients with amyloid diseases. They only treat USA based patients. |
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The Adam Gardiner Foundation (Australian)
The Adam Gardiner Foundation's mission is to raise funds & awareness for Amyloidosis while working within the structure of Westmead Hospitals Immunology Department and its Institute for Immunology & Allergy Research (IIAR). |
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Amyloidosis Research Foundation
This foundation has been established to secure funds for research to find the cause of amyloidosis and develop more effective means of diagnosis and treatment (USA based) |
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Amyloidosis in Canada
The Canadian Amyloidosis Support Network |
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Amyloidosis in Holland
Pages in both English & Dutch |
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Amyloidosis in Italy
The Pavia centre - some great information in Italian on this website. The director is Prof. Giampaolo Merlini. |
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Amyloidosis in Portugal
Mainly on Familial/Hereditary Amyloidosis. This site has an English version. |
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Amyloidosis in the United Kingdom
Registered as a charity in 1997, Myeloma UK is the only organisation dealing exclusively with myeloma and its related disorders in the UK. This link is to their information on AL Amyloidosis.
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The Teague Family Website
Sam & Jan Teague's (USA) personal journey with Amyloidosis
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