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Amyloidosis Australia Inc grew out of our family's experience of living with the disease (Primary Amyloidosis) for many years. See the Reid Family's biography here.
Amyloidosis Australia Incorporated was incorporated on the 5th of August 2005 under the Associations Incorporation Act 1981 in Victoria Australia (ABN: 92 988 016 374).
Amyloidosis Australia Inc., is recognized by the Australian Taxation Office as a Health Promotion Charity, and is endorsed as a Deductible Gift Recipient from 16th August 2005. It is also Income Tax exempt, FBT exempt and has GST concessions. The rules of the Association are set out in a legally prepared Constitution.
The Association's objectives are:
1. To provide support for patients, families and carers of those affected by Amyloidosis in Australia and New Zealand.
2. To provide information on Amyloidosis to members of the public and medical professions in Australia and New Zealand.
3. To support research into Amyloidosis in Australia and New Zealand.
We do not claim to be medical experts, but we have gained an extensive amount of information about Amyloidosis from our own personal research of medical journals, books, and attendance at the Amyloidosis Symposium (France) April 2004, the International Myeloma Workshop (Sydney) May 2005, the Amyloidosis London Seminar June 2005 at the Royal College of Physicians, the Nov 2006 Amyloidosis Symposium (Boston) and associated Patients Day, and the Mayo NZ Haematological Education Seminars. We have also held Support Group Meetings for Amyloidosis in Australia, attended some in Europe, as well as attending those for Myeloma and Waldenstrom's Macroglobulinemia
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